Anencephaly:

- Online support group for mothers/families whose baby has been newly diagnosed with anencephaly; who are currently carrying an anencephalic baby to term and who have carried a baby with anencephaly as long as they could.

Anencephaly Blessings from Above - An online support group providing information, support, and most of all a safe haven to families of babies with anencephaly.

Anencephaly Information - Information about the birth defect anencephaly.  Help for affected parents, caregivers, family and friends.

Anencephaly Angels Webring - a collection of anencephaly stories

Anencephaly Blogs I follow:

Caring for Carleigh 

A Road Less Travelled 

The Story of Faith Hope 

Emma's Story 

Duane syndrome:

Miscellaneous:

Amy Waddington Photography - A wonderful photographer and friend. Amy has taken many beautiful pictures of our family, including our journey with Lyla.

Now I Lay Me Down To Sleep - A network of 6,000 volunteer photographers in the United States and twenty-five international countries. At a family's request, a photographer will come to your hospital or hospice location and conduct a sensitive and private portrait session with your family and terminally ill child at no cost.